Alpha 1 Village

Alpha-1 Disease is a severely under-diagnosed genetic disorder of the liver.   Approximately 25 million (or 10% of ) Americans have some form of this disease yet as few as 5% of  those affected are ever diagnosed.  Early detection and lifestyle adjustments can greatly improve the quality of life and survival rates of patients.  The Alpha-1 Village exists to increase awareness of Alpha -1 antitrypsin deficiency and to provide educational, emotional, financial and medical support for patients and their caregivers.

Thank you for your interest in this disease and the Alpha 1 Village.  With your support, we can increase awareness of and testing for this disease.  Early detection and lifestyle adjustments can significantly improve in the life of an Alpha-1 patient.